Well, today is our 2 week anniversary! I really can't believe that just 14 days ago we all went through that amazing, anticipated, horribly scary, very long and yes, wonderful day. It's not something that I ever want to go through again, but we have been counting our blessings since the moment Henry came out of surgery.
People have been asking me for the past several days...'When's the next update? I keep checking!' I have been thinking of posting something just about every single hour of every day since we have been home, but I had to get into the right 'frame of mind' too before I could do anything! Henry has been doing so amazingly well since we have been home ~ and we simply cannot be more thankful!!! He goes one hundred miles per hour from sun-up to sun-down and it is completely exhausting to anyone who is witness to his constant walking, running, climbing, dancing, tractor-riding, food-searching, singing and ball-playing activities!! He does NOT stop!! For all of these things we are more greatful than you can imagine...my dream comes true every time I see Henry trying to keep up with his brother and sister and neighbor friends outside. (He can't quite 'hang' just yet, but just give him a few months...)
Regarding the seizures ~ well, I guess we are not included in the small percentage of people who have 'total success' with stopping them. (This is the part that has been making me in a bit of a 'bad mood' lately!) He is still having several smaller 'twitches' each day. They seem to affect both sides of his body, though he has NOT had an incident of falling down, or bonking his head or face one single time since the surgery. On one instance he was even walking around and had one of these seizures and he did not come close to falling down ~ he looked at me, and I looked at him as if neither of us knew what to do! Then off he went.... Soooooo, Paul and I are trying to remember the goal of the surgery, which was not to STOP the seizures from happening at all (though of course that was our fervent prayer), but simply to stop them from causing him to drop to the ground so many times per day. In that, I must say, we have seen complete success thus far!
While we hold our breaths and look for the moment that we can actually say, 'It worked!', we are all having wonderful, 'first-time' moments with Henry every single day.....
- Tonight was the first time in over one year that Henry sat at the dinner table with me, Paul, Lane and Sam and we all ate together. He had 4 helpings of green beans, all his chicken and a half of a peach...and then he threw his bottle on the floor and laughed. And he was a dirty, greasy, beautiful mess at the end.
- He can order his 'own' diet Coke from Mr. Burger and likes to drink so much he can burp like his Daddy.
- He and I walked almost all the way around the block...he got a little lazy on me at the end, but he walked a very long way!!
- He ran after Lane and Sam and his friends Kade and Kamden tonight in the yard...chasing them as fast as he could go (he was way behind, but he didn't know it!) yelling the whole way...'Wait Up!!!' (It didn't really sound like that, but I know that's what he was saying!)
- We were at school for Lane and Sam and I suddenly realized I didn't know where Henry was. Well, where else?.... on the basketball court trying to shoot hoops with about 20 other kids ~ ooh that was a good sight!
So, needless to say, Henry is doing wonderful. He goes back to Memphis on August 26 for his first post-op visit! Paul and I continue to be amazed every day at the care and concern that people show us every single day. We have been overwhelmed with food, phone calls, emails, cards, messages, etc. Thank you for continuing to keep Henry, and all of us, in your thoughts and prayers as we continue the journey to complete healing. Look for our next update in a more timely fashion!!!
Love, Shelley

3 comments:
WHEW!!! So good to hear an update! It appears that, all things considered, Henry is an amazing child and is showning improvement. Not the complete miracle we had hoped and prayed for (YET!) but a miracle all the same.
Hang in there...
Kelly, Grace and Lizzie
I just love you guys sooo much. Reading the post , I can picture every little bit. I am thankful for every second he does not have a seizure, and the times he does I'm thankful it is minor. He is a wonderful boy full of life and experiences to come. Give him hugs and kisses from Aunt Vic...hell, give 'em all smooches!!
XXXOOO
Wow so glad I could give everybody around here an update. Especially the ones who have no computer skills at all (terry & monther-in- law). I will print this out and they can see for themselves how awesome Henry is doing. Hugs & kisses to all Melody
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