Home again!! Monday 9:23pm

Shew!! We made it!

It is so great to be home, back to Lane and Sam! They didn't seem to miss us too bad ~ bowling, swimming, shopping, sleepovers, eating-out, amusement parks ~ I'm not sure they knew we were gone!

The trip home was uneventful. Henry and I slept alot. Thank goodness...

One of our biggest problems at the moment is that Henry is completely spoiled 100% rotten (as if he wasn't before), and he thinks the entire world is revolving totally around him. He has absolutely zero intention of getting into his own bed and going to sleep. We have been trying for the past hour and a half. His eyes are about half open, but if we move toward the bed he pops his head up and shakes his head 'NO'! Then he screams. And screams. Well, I don't know if screaming and crying can actullay hurt him at this point, but I can't bring myself to think that it can be good for his healing head, so.....guess what, he gets exactly what he wants. He is currently snuggled in the chair with his Daddy watching ~what else ~ poker. Happy as a clam.

He did have a little seizure activity today that we could notice. It's important for us to remember that the surgery was not intended to actually stop the seizures from starting (although it can have that effect on some), but it was done to prevent any seziure from spreading across Henry's entire brain and causing his entire body to collapse. So, the slight arm 'twitches' that we have noticed are actually to be expected to some extent....it's the total head-dropping that we want to avoid completely. I think it's just too early to try to judge every little movement that we see from him, but Paul and I are staring at him 24/7 and it's almost impossible not to try to analyze each and every little movement.

We are anxious and terrified as we move into this next 'phase' to see what the outcome of all this is going to be in the end. We will keep praying, and I am going to do my very best to heed the words of Ms. Rindel (the nurse who sang with her beautiful voice in the chapel on Thursday) who said to me, "Stand with courage. Do it for your baby. Stand with courage."